25% ME Group was set up to offer support services to those severely affected by ME (Myalgic Encephalomyelitis), and their carers.
Action for M.E. is the UK's leading charity dedicated to improving the lives of people with M.E
Action for Sick Children (Scotland) is the only charity in Scotland dedicated to informing, promoting and campaigning on behalf of the needs of all sick children within our healthcare system.
Advocacy Matters provides independent advocacy to people aged 16 or over, resident, studying or in hospital in the Greater Glasgow area who experience mental health problems.
Alzheimer Scotland is a leading voluntary organisation helping people with dementia, their families and carers.
Arac identifies obstacles which prevent inclusion of disabled adults and children. By means of: Creating an Empowerment Centre, for knowledge exchange, integration and inclusion. Please contact LTCAS for details.
Arthritis Care in Scotland is the voice for people with arthritis in Scotland.
Asthma UK Scotland is dedicated to improving the health and wellbeing of people with asthma in Scotland.
Ayrshire Cancer Support was founded in 1982 to provide emotional support and practical help for cancer patients and their families and carers throughout Ayrshire.
Backcare (Lothian Group) is an independent national charity that helps people manage and prevent back pain.
Bowel Cancer UK aims to save lives by raising awareness of bowel cancer, campaigning for best treatment and care providing practical support and advice.
Brain IAC (Brain Injury Awareness Campaign) is a group of people with their own individual stories, who are all on the same mission- to improve things for the future. Brain Injury affects 3500 people per year in Glasgow alone and it doesn't discriminate- it can get you whenever, wherever and whoever you are.
The Braveheart Association helps people with heart problems in Falkirk and Clackmannanshire.
Breakthrough Breast Cancer is the UK's leading charity committed to fighting breast cancer through research, campaigning and education.
British Heart Foundation Scotland invests in pioneering research, and support and care for heart patients
British Lung Foundation One person in seven in the UK is affected by a lung disease, whether it is mild asthma or lung cancer, the British Lung Foundation is here for every one of them.
British Stammering Association Scotland operates wholly within the remit of the UK association. However, the Scottish branch serves as a focus for Scottish campaigns, events and services, and can engage more effectively with the national agencies in Scotland.
Cancer Care Research Centre was established so that people affected by cancer could help shape the future of cancer services in Scotland.
Cancer Link Aberdeen and North (CLAN) is a charity for anyone affected by any cancer at any time from diagnosis onwards.
Cancer Support Scotland (TAK TENT) promotes the care of cancer patients, their families, carers and friends, providing emotional support to all.
Care Co-ordination Network UK (CCNUK) is a networking organisation promoting and supporting care co-ordination or key working for disabled children and their families in England, Northern Ireland, Scotland and Wales.
Carers Scotland is the Scottish national office of Carers UK and is the only carer-led organisation working for all carers.
Cavernoma Alliance UK is a charity created by people affected by cavernoma otherwise known as cerebral cavernous malformations or cavernous angioma
Centre for Health and Wellbeing aims to improve the lives of the increasing numbers of people who suffer from long term medical conditions such as Diabetes, Parkinson’s, Multiple Sclerosis, Epilepsy, Depression, Obesity and Respiratory Conditions - no website at present. Please contact LTCAS for details.
Centre for Sensory Impaired People (SITE)- to provide training and support to people affected by site loss.
Changing Faces Scotland is a charity that supports and represents people who have disfigurements of the face or body from any cause.
Chest, Heart and Stroke Scotland aims to improve the quality of life for people living in Scotland affected by chest, heart and stroke conditions.
Child Brain Injury Trust is a UK-wide charity offering support, information and training on childhood acquired brain injury.
Circles Network works with disabled and disadvantaged individuals. Our work in Scotland is focused primarily on mental health advocacy and training related to this area.
Clydeside Action on Asbestos provides practical advice and support to those diagnosed with an asbestos-related condition and their families - no website at present. Please contact LTCAS for details.
Coalition of Carers in Scotland is the information network for carers and carer organisations across Scotland.
Community Health Exchange - CHEX is one of the leading agencies in Scotland that provides a resource in supporting community development approaches to health improvement and challenging health inequalities
Confer supports those who live with neurofibromatosis in Scotland.
Contact a Family is a UK-wide charity providing advice, information and support to the parents of all disabled children.
Cystic Fibrosis Trust is the UK’s only national charity dedicated to all aspects of Cystic Fibrosis
Deaf Action has provided a range of services for people who are deaf. Working in partnership with a variety of agencies.
Diabetes UK Scotland works for people with diabetes, funding research, campaigning and helping people live with the condition.
Disability Concern Glasgow promotes service improvements for disabled people in the West of Scotland.
Disability Information Greater Glasgow (DIGG) aims to provide people who have a long-term disability with the information they need to have control of their lives and to live life to the full.
Disability Information Services in Perthshire (DISIP) allows clients to obtain a diverse range of information from one call or meeting, and from a single source.
Downs Syndrome Scotland works to help people with Down’s syndrome reach their full potential by providing information and support to them, their families, carers and professionals.
The Dystonia Society helps and supports people with dystonia.
Edinburgh ME Self Help Group (Edmesh) provides support, information and friendship to people affected by Myalgic Encephalomyelitis.
Epilepsy Connections is a community based support for people living with epilepsy in the Greater Glasgow area.
Epilepsy Scotland is Scotland's voice for epilepsy, providing support and information.
Epilepsy West Lothian is a recognised Scottish Charity providing services relevant to epilepsy to the people of West Lothian, which has an estimated population of over 150,000.
Equal Futures is funded and led by families who have chosen to take the initiative to plan and support their disabled relative to enjoy a good life anchored by inclusion and lifelong loving relationships
Fap Gene is an inherited condition which mainly affects the large intestine
Fibromyalgia Friends Scotland is a support group for people who live with fibromyalgia.
Genetic Interest Group is a UK wide alliance of over 130 patient organisations that support people affected by genetic conditions.
Gorbals Healthy Living Network provides health opportunities for people in the Gorbals area of Glasgow.
Gorlin Syndrome Group is a support network offering guidance, advice and information to patients, their families and carers whose lives are affected by Gorlin Syndrome
Haemophilia Scotland works for people with haemophilia and bleeding disorders in Scotland.
The Haven Centre is a registered charity which provides holistic support to people affected by a life-limiting illness.
Headway, Edinburgh is a charity that Supports people with a brain injury and those who care for them.
Hearing Concern Link is the newly united charity providing support and information to people with a hearing loss and their families (formerly Hearing Concern and the LINK Centre for Deafened People).
Highland Community Care Forum has, over the past 20 years built up a portfolio of services for carers.
HIV Scotland is the leading national policy and strategic HIV charity.
Hypermobility Syndrome Association (HMSA) (also known as Ehlers-Danlos Syndrome Type 3/Hypermobility) provides support and information to those affected by this Syndrome.
IA (The Ileostomy and internal Pouch Support Group) primary aim is to help people who have to undergo surgery which involves the removal of their colon and the creation of either an ileostomy or an ileo-anal pouch
Inverclyde Asthmatic Caring Group provides nebulisers to people with respiratory disorders in Inverclyde.
KICC Project offers a range of gentle exercise classes for those with any long-term condition
Lanarkshire M.E. Support and Advice Group provides support and advice to people with M.E. in Lanarkshire - no website at present. Please contact LTCAS for details.
Living Better is led by RCGP Scotland, in partnership with the Scottish Development Centre for Mental Health and the University of Stirling. Other partners in the project include Diabetes UK Scotland, British Heart Foundation (Scotland), Chest Heart and Stroke Scotland, and Depression Alliance Scotland
Lothian Centre for Inclusive Living (LCIL) is a disability and user-led organisation providing practical services to disabled people in the Lothian region.
Lupus UK is the only national registered charity supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis.
Macmillan Cancer Support improves the lives of people affected by cancer.
Marie Curie Cancer Care provides free care to cancer patients and those with other terminal illnesses in their own homes.
Max Appeal supporting families affected by DiGeorge syndrome, VCFS and 22q11.2 deletion
MECOPP provides a variety of services to Black and Minority Ethnic carers and communities locally, regionally and nationally.
ME Support is a support group for people with M.E. in the Stirling area - no website at present. Please contact LTCAS for details.
Melanoma Action and Support Scotland (MASScot) is a support group for people who have been diagnosed with melanoma.
Men’s Health Forum Scotland is a registered charity whose main aim is to improve the health and wellbeing of men in Scotland.
Meniere’s Society is a UK registered charity dedicated to supporting people with Meniere’s disease and vestibular disorders. Meniere’s disease is a long term progressive condition affecting both balance and hearing parts of the inner ear.
Mindfulness Scotland exists to bring the practices of mindfulness to a wider audience in Scotland, including initiating robust, ground-breaking research into its potential benefits for the wellbeing of different groups.
Moebius Research Trust was set up in September 2006 with the original four parents as trustees. Their aim is to raise the £250,000 required to allow the analysis to get underway
Momentum works in partnership to enable and empower disabled and excluded people to identify and achieve their goals.
Multiple Sclerosis Society Scotland is Scotland's largest charity for people affected by multiple sclerosis.
Music in Hospitals enables people of all ages in hospitals, hospices, care homes and day care centres to enjoy the therapeutic benefits of high quality live music.
National Association for Colitis and Crohn's Disease (NACC) brings together people of all ages who have Crohn's Disease or Ulcerative Colitis, which includes Proctitis, their families and the health professionals involved in their care.
National Autistic Society champion the right and interest of people with autism and aim to provide individuals with autism and their families with help, support and services that they can access, trust and rely upon and which can make a positive difference to their lives.
National Osteoporosis Society is dedicated to eradicating osteoporosis and promoting bone health in both men and women.
National Rheumatoid Arthritis Society provides information on symptoms and treatment.
National Schizophrenia Fellowship (NSF) (Scotland) is a registered charity, led by its members.
Neurological Alliance of Scotland is a focused and purposeful forum of not-for-profit organisations and groups representing many thousands of people affected by neurological conditions in Scotland.
Pain Concern provides information and support for pain sufferers, those who care for them and about them.
PAMIS is in partnership with people with profound learning disabilities and their carers.
Parkinson’s UK is the leading charity dedicated to supporting all people with Parkinsons, their families, friends and carers.
The PBC Foundation provides support for people with primary billiary cirrhosis, their families and friends.
Pelvic Instability Network Scotland (PNS) provides information about, raises awareness of and provides support to everyone affected by pelvic girdle pain.
Penumbra is one of Scotland's leading mental health organisations, providing a wide range of support services for adults and young people.
People First (Scotland) started in 1989. It is the independent self-advocacy organisation in Scotland. We are run by and for people with learning difficulties.
Pink Ladies provides confidence building courses for women in Midlothian suffering from anxiety and depression.
Polycystic Kidney Disease Charity are dedicated to the concerns of people affected by Polycystic Kidney Disease - PKD - a range of inherited, incurable renal conditions
Princess Royal Trust for Carers was created on the initiative of HRH The Princess Royal in 1991. At that time people caring at home for family members or friends with disabilities and chronic illnesses were scarcely recognised as requiring support.
The Progressive Supranuclear Palsy Association is the only national organisation in the UK dedicated to the support of people with PSP.
The Prostate Cancer Charity Scotland was set up in 1996 in response to the urgent need to increase investment in prostate cancer research and to raise public and political awareness of a long neglected disease.
The Psoriasis Association provides information to give a better understanding of what psoriasis is, what causes it and what treatments are available.
Psoriasis Scotland, Arthritis Link Volunteers (PSALV) provides Scottish based patient information, support and advice on psoriasis and psoriatic arthritis.
Quarriers provides a variety of support services to children, adults, young people and carers. Their four main areas or work are epilepsy, children and families, adults with disabilities and young people.
Revive MS Support is a charity dedicated to helping everyone affected by Multiple Sclerosis.
Royal National Institute for Deaf People (RNID) helps people identify whether they have a hearing loss, campaigns for change, provides services and training and actively supports scientific and technological research.
Royal National Institute for the Blind (RNIB) supports blind and partially sighted people.
Scotland Transverse Myelitis (TM) Support Group was established in 1994 as an organisation dedicated to advocacy for those who have these rare neuroimmunologic diseases.
Scottish Association for Mental Health (SAMH) is Scotland's leading mental health charity.
Scottish Burned Children's Club is an organisation that helps children, up to the age of eighteen, who have sustained burn and scald injuries.
Scottish Disability Golf Partnership is governed and operated by disabled people.
Scottish Huntington’s Association provides expert care to families.
Scottish Post Polio Network provides support for polio survivors in Scotland.
Scottish Spina Bifida Association is Scotland’s voice for Spina Bifida, hydrocephalus and related conditions.
Sense Scotland is part of the UK National Deafblind and Rubella Association and is registered as a company with charitable purposes in its own right in Scotland.
Shared Care Scotland was formed to promote and support the development of flexible, imaginative and person centred short break services (respite care) throughout Scotland.
Shine on Scotland is campaigning to get vitamin D for every child in Scotland as a preventative measure against Multiple Sclerosis.
Skin Care Campaign Scotland represents the interests of patients and patient groups. Members come from a wide range of organisations representing people with skin conditions.
Speakability helps aphasic individuals rebuild communication through information services and self-help groups.
Spinal Injuries Scotland is the national voluntary organisation concerned with new and long-term spinal cord injured people, their relatives and friends along with those involved in the management, care and rehabilitation of the injury.
The Stroke Association works for a world where there are fewer strokes and all those touched by stroke get the help they need.
TAP Fibromyalgia Support Group provides help and support for people with fibromylagia in Tayside, Angus and Perthshire.
Target Ovarian Cancer is dedicated to achieving a long and good life for every woman diagnosed with ovarian cancer in the United Kingdom
Terrence Higgins Trust is at the forefront of the fight against HIV, and improving the nation's sexual health.
The Thistle Foundation provides services to support disabled people live full and active lives.
Tourette Scotland is a registered charity dedicated to providing support and information to people living with Tourette syndrome and promoting "empathy not sympathy."
The Towpath Trust supports organisations which provide services and opportunities for people with disabling conditions.
Transverse Myelitis Scotland Support Group is dedicated to advocacy for those who have these rare neuroimmunologic diseases.
Tuberous Sclerosis Association is the UK charity that supports individuals, promotes awareness and seeks the causes and best possible management of Tuberous Sclerosis Complex (TSC).
Turning Point Scotland provides person-centred support to people affected by alcohol and drug addictions, mental health issues and learning disabilities.
Uveitis Information Group are a patient led charity, based in the UK, run by volunteers who suffer from uveitis.
VOCAL supports carers living in Edinburgh and the Lothians.
Voluntary Health Scotland (VHS) is a national intermediary body of voluntary and community health organisations.
Waverley Care is Scotland’s largest charity providing support to people with HIV and Hepatitis C and to their partners, families and carers.
Our Associates
Ardersier Patient Participation Group act as a liaison and communication channel between patients and practice staff. Please contact LTCAS for details.
Allied Health Professions Forum Scotland works to promote and optimise Allied Health Professionals’ essential contribution to improved patient care. No website at present. Please contact LTCAS for details.
Alliance for Self care Research undertakes rigorous research to provide an evidence base for "enhancing Self-care".
Ayurveda 4 all primary objective is to empower the people of Glasgow to care for their own health by offering education, consultations and therapies.
The British Association and College of Occupational Therapists is a professional body for Occupational Therapists and Occupational Therapy students in the UK.
The Chartered Society of Physiotherapy provides a wide range of member services and campaigns on behalf of physiotherapists and the physiotherapy profession.
Citizens Advice Scotland (CAS) is a national umbrella body that provides essential services to Scottish Citizens Advice Bureaux.
Community Network supports isolated people through the provision of telephone support groups to end the social and geographical isolation, dealing with issues such as lack of mobility, physical or emotional illness etc.
Cornwallis Associates provides high quality training and development programmes for improving health, reducing inequalities, motivating behavior change and improving communication skills. No website at present. Please contact LTCAS for details.
Diabetes UK Inverness and District Group provides information, advice and support to people with diabetes and their carers. Please contact LTCAS for details.
Edinburgh Carers Council are an independent organisation that provides advocacy, information and learning opportunities to carers.
Edinburgh University Settlement is a social action centre which strives to enhance public provision for those individuals who are disadvantaged through circumstance or disability and aims to help local people in and around Edinburgh bring about social change and regeneration for their communities.
Fife Sports and Leisure Trust want to be widely recognised for excellence in the provision of facilities and services for sport, recreation and physical activity.
Health Rights Information Scotland produces information for patients about their rights, about how to use NHS services, and about what they can expect from the NHS.
International Futures Forum is a charity established to support a transformative response to complex and confounding challenges and to restore the capacity for effective action.
Life Support Partnerships aims to raise awareness of the skills of experiential focusing and listening and offers skills training workshops and information for self and peer support. No website at present. Please contact LTCAS for details.
LinkLiving is a listening, responsive organisation that works in partnership with people, providing a range of care and support services.
Long Term Conditions Collaborative helps people to deliver improvements in patient-centred services and change the way care is provided for people with long term conditions.
Moray Carers Project raises awareness of carer issues and needs and identifies and signposts hidden carers throughout Moray.
National Association for Colitis and Crohn’s Disease - Clyde Group provides support and information for Inflammatory Bowel Disease (IBD) patients and their families, raise public and political awareness of IBD; strive to improve health services and provision for IBD in the Greater Glasgow and Clyde area.
NHS Border Improves the health of the people of the Scottish Borders
NHS Education for Scotland (NES) provides knowledge and information services and trains staff and partners of NHS Scotland.
NHS Fife is working to improve services with the involvement and support of the public, our partners in other NHS Boards, Fife Council and voluntary agencies
NHS Forth Valley is governed by a Board of Directors and is accountable to the Cabinet Secretary for Health and Wellbeing through the Scottish Government Health Directorate.
NHS Greater Glasgow and Clyde provides health care over the Greater Glasgow and Clyde area.
NHS Lanarkshire is responsible for improving the health of more than 553,000 people living within the North and South Lanarkshire local authority areas.
NHS Tayside is responsible for meeting the health needs of more than 388,780 people living in Tayside.
Nursing and Midwifery Council (NMC) exists to safeguard the health and wellbeing of the public by registering all nurses and midwives in the UK and setting standards of training, education and conduct. The NMC is happy to be an associate member of the LTCAS but, as an independent statutory regulator, does not take part in the campaigning activity of LTCAS.
Outside the Box Development Support provides community development support to individuals and organisations across Scotland. This includes work with people who have long term conditions.
Paths for All Partnership works towards 2 equally important, interlinked, long term outcomes, Reduce the proportion of the population who are inactive, through a national walking programme.
Royal College of Nursing Scotland represents nurses and nursing, promotes excellence in practice and shapes health policies.
The Royal College of Speech and Language Therapists is the professional body for speech and language therapists and support workers. We set, promote and maintain high standards in education, clinical practice and ethical conduct
Scottish Commission for the Regulation of Care were set up in April 2002 under the Regulation of Care (Scotland) Act 2001 to regulate all adult, child and independent healthcare services in Scotland.
Scottish Partnership for Palliative Care is an umbrella organisation and representative body for palliative care in Scotland.
Scottish Recovery Network (Penumbra) was formally launched in 2004 as an initiative designed to raise awareness of recovery from mental health problems
The Sheila McKechnie Foundation is dedicated to equipping campaigners with the skills they need to change the world.
The Single Gene Complex Needs Project provides a model of service delivery which supports an integrated collaborative working practice embedded in evidenced-based learning. No website at present. Please contact LTCAS for details.
SKS Scotland aims to deliver 'hands on' business support to organisations in the third sector and to engage with people with Long Term Conditions to deliver this service. No website at present. Please contact LTCAS for details.
Society of Chiropodists and Podiatrists is a professional body and trade union representing HpC registered Chriopodists/Podiatrists in NHS and private practice.
South East Area Lifestyle (SEAL) Community Health Project aims to reduce inequalities and ensure equal access to a healthy lifestyle, for all residents in the Gorbals, Govanhill, Toryglen, Pollokshields and the wider South East area of Glasgow.
Taptastic aims to share and teach the self empowering healing technique, Emotional Freedom Technique (EFT) to people living with long term conditions. No website at present. Please contact LTCAS for details.
Tayside Healthcare Arts Trust (THAT) develops arts programmes and services relevant to the needs of participants in collaboration with hospital/community staff. No website at present. Please contact LTCAS for details.
Universal Comedy provide a range of support services including specialist comedy clinics, and clinical comedy training courses, conferences, events, and professional services to staff.
The Volunteer Centre Glasgow aims to improve the quality of life for the people of Glasgow by offering opportunities to use and enhance their skills in volunteering, training and personal development.
VOX (Voices of Experience) seeks to take a leading role in creating an environment where mental health problems are not a barrier to participating in any aspect of Scottish society.
Walking on Wheels Trust the objective of the Trust is to advance education, promote the health and welfare, and to relieve the suffering and distress of persons who have mobility disabilities.
Wellness and Health Innovation (WHI) Project is a national initiative designed to support Scottish SMEs that are developing innovative products, services or applications.
West Dunbartonshire Community Volunteer Service (WDCVS) exists to promote, develop and support volunteering and third sector activity throughout the area of West Dunbartonshire.
Individual Supporters
Sabrina Allison
Martin Hilland
Dr Lisa Kidd
Marie McGill
Jan Wells
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